Lucky to Be Alive: Riley’s Story
By: Riley Schumacher
When I was an infant, I was diagnosed with common variable immune deficiency.
I spent most of my childhood fighting for my life, spending time in hospital beds, hoping that I would make it to adulthood. My parents spent most of their time fighting for me, either with doctors or health insurance companies that didn’t want to cover me because of my health problems.
My mother took care of me, comforted me, and made sure I was supported. My dad fought for me by advocating and often fighting against health insurance companies to get coverage for experimental treatments. They knew how to navigate the health care system in order to get the care that I needed and keep me alive.
I know that many people with my health problems would not have had access to the same resources. They would not have been able to afford the live-saving care they need.
I am lucky to be alive. But the lives of Minnesotans shouldn’t be dependent on luck.
Because the state of Minnesota values its children, I was put on TEFRA—Medical Assistance (MA) for children with disabilities. When I got older, I was diagnosed with fibromyalgia, asthma, and mental health complications.… Continue reading »